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A Hope to Create Unity in Neurodiversity: Akhil Lad on Living with Autism

Team StoryWeavers|April 29, 2022, 13:37 IST| 11

Imagine you see a huge brown patch on a bright white wall. To some of us, that’s a stain, to some of us, it’s art. Ultimately, it’s a matter of how we perceive something, how our body responds to it and understanding that both those analogies are not wrong.

That’s neurodiversity, which typically describes how each individual has a different way they experience and interact with the world, and nothing is defined simply as the “right way” of thinking.

But this word is often used in the context of autism spectrum disorder (ASD), as well as other neurological or developmental conditions such as ADHD or learning difficulties.

Akhil Lad, a 20-year-old based in New Jersey and a student of BYJU’S Future School, has been dealing with autism since his early years. From struggling with communication and relationships in his adolescence to pursuing an Associate Science Degree at Rowan College South Jersey, Akhil has come a long way. He is also the reason and inspiration behind the Akhil Autism Foundation, which was founded by his parents. 

In a conversation with BYJU’S Education for All, Akhil shares his experience of an autistic lifestyle, and how the neurotypical society can be more inclusive and receptive to the differences.

What are some activities you love to do?

I like listening to music, and there’s one type of music that my mind wants me to play again and again on YouTube. While I go in the car for a ride, I connect that form of music to my mind. I like to analyse the composition and also, the meaning of the sound. I also like spending time with my family and playing with my siblings.

Tell us about your experience being accepted into college?

The college experience is important for everyone, and I, too, was interested in the same. However, being minimally verbal, I always thought I would not attend college. I was unsure whether the college would accept me, but I am incredibly happy that my college is good, and that they accepted my form of communication. I handed the transcript to the college, and the teachers showed a number of courses that I could take up – maths, geometry, science, and college courses like Algebra and English composition.

Growing up, what were some of the challenges that you faced being autistic?

My body not cooperating with my mind is the biggest challenge. For the mind to understand, I have to show it many concepts and then analyse them in the mind.

In order to tell the body what to do, my mind will make a plan and the body has to follow – however, I process many concepts in the form of symbols and pictures. The body has to think like the mind.

akhil-lad-autism

Akhil Lad

Do you face any challenges in communication with a new person or in social situations?

The mind and body have to be in sync for effective communication. To express myself in a manner that another person would understand sometimes does not come naturally. Social situations are very difficult as it requires too many analyses – what’s happening in the mind, what’s happening in the environment.

What methods usually help overcome some of these challenges?

For good communication, I need options or choices of pictures and words – I like to think in pictures and that can make my mind understand easily. Too much noise is a sensory overload for me, and I need to slow my mind down by covering myself in a blanket or going to the corner of a quiet place. Also, I drink a lot of water and that helps my mind and body.

Do you think it is okay for people to ask you questions about autism?

Yes, we can show you our thoughts and now you can understand us much better than doing the analysis in your mind. It is easy for people to misunderstand us and have false perceptions of us. So, when they ask questions, we can help many of these perceptions go away.

How can we create inclusive communities for people with neurodiversity?

For neurodiversity, one has to show many solutions for showing acceptance and understanding the sensory overload. The body will show many behaviours, that one finds annoying. We shouldn’t be judged for these differences in communications and behaviours.

How can neurotypical individuals make neurodiverse people feel comfortable?

On the outside, we will show many behaviours and they will be annoying to the neurotypical individuals. They may not find them not normal and may think we are misbehaving. So, if we have meltdowns, and need a calming environment, we wish to not be judged. We have to be accepted and understood with no assumptions or labels. The neurotypical society should form a relationship with us, by accepting our differences with integrity.

Do you enjoy using the BYJU’S App? What is your favourite thing about it?

Yes, the app is very good and has excellent concepts for programming. We are given step-by-step instructions to learn different coding languages and applications. My favourite thing about the app is the sprites, and connecting the sprites during fun games.

 April is celebrated as Autism Awareness Month, and as members of society, it is imperative to foster an environment that is conducive to neurodiversity. We must recognise every person’s differences and provide them with the strength and support that they need to adapt to society.

Also Read: BYJUites Narrated Stories to the Kids of IDEA Foundation

About the Author


Anju is a peace-lover, a video-game addict, and a childhood doodler who imagined that the scribbles were words. This storyteller enjoys a good read, some doodling, and learning new languages. One day, she hopes to write her own story someday, and hopefully in the French language, too! She never loses hope of making the world a better place to live in.

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Comments



Shreya Jain

April 29, 2022

Thank you for sharing Akhil’s story, Anju.


Renuka Patil

April 29, 2022

Kudos to Akhil…
As a mother to a 10 year autistic child, I can relate to Akhil and find his story so inspiring.
Many blessings to him for his journey ahead…..


Manisha Lad

April 30, 2022

thank you BYJU’s team Shreya Jain and Anju and Ankita M


kamali kalaimani

April 30, 2022

very intersting


Mahesh L

April 30, 2022

Great going Akhil… will always be proud of your amazing achievements❤️ … May Swami continue to bless you and be with you all along for your continued success, happiness and prosperous journey ahead …. ❤️


Ashwin

May 1, 2022

This great.

Kudos Akhil for making most of the BYJU’S we at byjus product design will put more effort in making our apps more suitable for neuro diverse learners. Your story is quite inspiring and giving us energy to do more.

Thanks Anju for the article great read


Adeena Pelberg

May 1, 2022

Thank you for interviewing Akhil, Anju. He is an inspiration to all those struggling with Austim and also without Autism! Finding a way to your place in the world applies to everyone on this planet!


PUJA GHOSH

May 2, 2022

Really felt very curious hearing the story of Akhil. am myself a special educator and counsellor who recently joined byjus as academic specialist, though notion and passion for teaching inclusively is a part of my life. i am really looking forward to be a part of byjus noble ventures in special education field and contribute whole heartedly towards making a new century where education is equal for all.


Manisha Lad

May 2, 2022

BYJUS noble ventures in the special education field – any such ventures, please keep us posted.AKhil and I would have a lot to offer in this space.


renuka choudhary

May 3, 2022

i am also pursuing my bachelor degree in intellectual disability, i understand there difficulties and how innocent and special they are .


Laxmi Duggineni

May 10, 2022

Awesome Akhil!
So proud of you! Keep up with your good work. Overwhelmed to read the story.


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